English title dissertation Exploring patients' preferences on care: A roadmap to tailored online self-management interventions
Name PhD (surname first) Ammerlaan, Judy
Doctor is (has been) nurse
Date of promotion 08/12/2016
University Universiteit Utrecht
Promotores Promotoren: Prof. dr. J.W.J. Bijlsma, Prof. dr. A.B.J. Prakken; co-promotoren: Dr. H. van Os-Medendorp en Dr. A.A. Kruize
Linkedin-account linkedin.com
Researchgate-url researchgate.net
Abstract (English)

In this manuscript, the learning experiences and reflections of a healthcare team on redeveloping the transitional care for young adults with a juvenile rheumatic disease are described. In this process of redeveloping care, the healthcare team experienced that small step, driven by patient stories and involvement of patients in all phases from development to evaluation, led to meaningful results. The eHealth interventions, developed to support the transition and to increase self-management were found to be feasible and evaluated positively by the young adult group. But the healthcare team also experienced that the focus on the patient alone, is not enough to implement self-management interventions and sustain patient centered care in daily practice. How healthcare professionals personally think and feel about patient centered care is essential and needs to be discussed in daily care.It determines the way of being present with attention and commitment in daily health care. It affects the hands, head and heart. A daily reflection on shared answers of the patient and the health care professional to the question ‘what is the most important to you?’may help to implement patient centered care in health practice.

Download dissertation (English) Proefschrift-Ammerlaan-J.pdf